Do An Online MS Caregiver Survey

Looking for a way to help advance knowledge about Multiple Sclerosis Caregiving? I know a way.

I have just completed an online survey which is sponsored by the National Alliance for Caregiving and the National Multiple Sclerosis Society. The survey took me about 20 minutes and was not difficult.

Here’s the survey link:

The study is investigating issues related to caring for someone with MS and the needs of family and friend caregivers. This research is NOT about professionally-paid caregivers.

The survey is completely anonymous and confidential. It did not ask for my name or contact information. Responses will be combined with those of other caregivers and will be shared with the National Alliance of Caregiving and the National Multiple Sclerosis Society so they can learn how to better meet the needs of those caring for people with MS.

If you are a family or friend caregiver for a Multiple Sclerosis patient and wish to assist with this anonymous research, click here:

If you wish to participate, please do so by Friday, October 21, 2011.

I was surprised that completing the survey helped me become a bit objective about an emotion-laden topic. Try it!


  1. EM said:

    Your Online MS Caregiver Survey lacked a lot of questions regarding to bedridden MS patients & issues associated with this state.
    Your questions regarding mobility had no option for a patients who is unable to sit-up in bed by themselves.
    Bedridden & MS is a whole can of worms that has been completely untouched in your survey.

    October 2, 2011
  2. cathy h said:

    Hi everyone Im so glad I found this. I take care of a friend ( Becky ) Who has Ms 5 years now. Its nice to know I’m mot alone. Just reading your comments has help me not feel so alone. THANK YOU FROM THE BOTTOM OF MY HEART
    I am 65 years old and still working full time.I have no to take care of Becky when I work. Of course it worrys be to death. While I’m working. I feel I never get a break. I plan on retiring in Decemer bayberry that will help. My kindle battery is going dead so will have to close. Thanks again.

    March 1, 2013
  3. bethywalks said:

    Great post. I’ve been looking after my sister who has multiple sclerosis and this was very helpful.

    April 21, 2015

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