Living With MS
My youngest daughter recently graduated from high school and celebrated her 18th birthday. While I know this means she will soon enter college, spread her strong wings and fly into her own future, I am neither sad nor melancholy about childhood’s end in our family. I am excited for her and the potential for good … Read more
MS costs a lot. If you’re an MS caregiver, you know this to be true. If you’re a casual reader, continue and learn about the predicament that faces Multiple Sclerosis patients and their families. Health care is expensive. Health care is especially expensive in the United States. I don’t know all the reasons why this … Read more
Continue reading about How Much Does Multiple Sclerosis Cost a Family?
Springtime in the South. I call it “Sneezin’ Season” because the pollen drives my allergies into hyperactive overdrive. I take one sinus pill at 5:30 in the morning and a different medicine before I go to bed. These are the only medicines I take and they are different colors, different shapes, are in different packages … Read more
Continue reading about Medication Administration Records (MAR)s
Hello Cancer, Goodbye Marriage: A new study shows that men are more likely to ditch their sick spouses, should really be titled, “Hello Illness, Hello Marital Stress”. The authors, Barbara Kantrowitz and Pat Wingert, are reporting on an article in the November 2009 issue of Cancer, titled, “Gender disparity in the rate of partner abandonment … Read more
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MultipleSclerosisSucks.com, subtitled, “How to Suffer from a Chronic and Incurable Disease without Appearing to be a Total Loser”, is a site MS caregivers should revisit from time to time. You should probably go no more than a year between readings of “The MS Perspective Kit“. It offers a unique way to help one understand what … Read more
Spend time on the Family Caregiver Alliance website at: http://www.caregiver.org Of particular interest to Multiple Sclerosis caregivers will be the Family Caregiver Alliance Fact Sheet on Multiple Sclerosis. In addition to common information about MS, the fact sheet includes important information about cognitive problems caused by MS and their impact on caregivers. For example, “About … Read more
Continue reading about Family Caregiver Alliance Publication on Multiple Sclerosis
During the last weeks my wife’s legs have troubled her. She quit driving a few days ago. Walking is difficult. I watched her in the kitchen from my chair in the living room as she literally had to think to slowly put one foot in front of the other to walk across the kitchen. (I … Read more
My wife fell this past week. When she fell, I was in an airplane between Phoenix and Dallas headed for a connecting flight on my way home from the last session of the Faith-based Leadership Institute. She’s strong and independent, but a part of me imagines she wouldn’t have fallen had I been home. She … Read more
Continue reading about Falling and Multiple Sclerosis Patients
We’ve enjoyed a fair amount of family travel this Summer. Most trips were by plane, but the best was a road trip across the South. Now that this Summer of travel is nearly over, I’ll share some tips I’ve picked up along the way about traveling and Multiple Sclerosis. 1. Take your medications and pack … Read more
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My wife made a comment last week that I’ve thought about a lot since she said it. It was said in passing in the middle of a conversation that I cannot remember (apparently, my wife’s not the only person in our family with poor memory). In this case, though, I think I fail to remember … Read more
Continue reading about Multiple Sclerosis, Wheelchairs and Lifespan
Recent Comments
“I think it's normal to want your significant other to have something you can manage. My husband found out just…”
“Kim, I am 36 and newly diagnosed (July), stories like yours are the exact reason that I have decided to…”
“Hi Gloria You're an amazing daughter and an amazing person. Youre moms decline has been fast. It sounds like your…”
“I haven't seen many posts on this site that are recent. I've been a caregiver since 2000..my husbands condition has…”
“Hi everyone! I've been reading all your comments and I feel relieved that what i'm feeling it's not an exclusive…”
“Great post. I've been looking after my sister who has multiple sclerosis and this was very helpful.”
“Hi Daryl I'm so sorry to hear about Amanda. But I also feel a sense of relief for you both…”
“Hi DH, I know the feeling. It took me a while to realize it to. It can be overwhelming at…”