An important resource for MS patients and caregivers is the Multiple Sclerosis Foundation (or MSF). The mission of the MSF is to “ensure the best quality of life for those coping with MS by providing comprehensive support and educational programs.” The quickest way to begin taking advantage of the free resources offered by the MSF … Read more
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ABLEDATA is an excellent online resource which provides information on products for people with disabilities. ABLEDATA is sponsored by the National Institute on Disability and Rehabilitation Research (NIDRR), part of the Office of Special Education and Rehabilitation Services (OSERS) of the U.S. Department of Education. ABLEDATA offers several different types of resources including links to … Read more
It’s Sunday. (And time for an opinionated ramble …) I heard an older gentleman married a long time to his wife say, “She doesn’t have MS. We have MS.” On the other hand, I’ve also heard and read stories of men who told their wives, “I can’t handle this MS stuff. I’m out of here,” … Read more
Literature exists because people need stories of others. Stories are why communities have libraries. Books of woe caution us. We’re encouraged by tales of people who advance against overwhelming odds. We’re quieted by stories of people with hope. Stories of others are important because they allow us to put ourselves in another’s place. Stepping outside … Read more
It’s normal for us to wonder if our own experiences are similar to others who find themselves in a similar situation. We expect to look around us and see people acting in certain patterns of behavior. We want to believe we all respond in a similar fashion to life’s hurdles. Of course, this isn’t true. … Read more
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We choose to face the future in one of two ways: prepared or unprepared. If you care for someone with a disease, daily needs and routines often require so much attention that preparation for the future sits on the back burner (bad pun alert). In terms of planning, I think every caregiver should consider fire … Read more
I spent last week in Arizona at a leadership conference. It’s difficult to feel good about going out of town for a week because I worry I’ll be needed at home. Fortunately, cell phones, text messaging and email make it easy to communicate with my wife and daughters throughout the day. But there are things … Read more
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“I think it's normal to want your significant other to have something you can manage. My husband found out just…”
“Kim, I am 36 and newly diagnosed (July), stories like yours are the exact reason that I have decided to…”
“Hi Gloria You're an amazing daughter and an amazing person. Youre moms decline has been fast. It sounds like your…”
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