Comments on: Finding Caregiver Support

By: Donna

Donna — Sat, 07 Jan 2012 18:23:00 +0000

No but I have a nursing background and looked it up. Unfortunately, the news is not good. IT’s a fast progressing bed sore that goes from a small spot to a large crevice in hours. There is no treatment that I could find and in the elderly, it has been found to be terminal. It has been noted to occur in MS patients but I’ve nver seen it in any of the literature. http://www.kennedyterminalulcer.com is where I found the information. I hope your loved one does not have it.

MS Caregiver Donna

By: Judy

Judy — Sat, 07 Jan 2012 00:04:46 +0000

Has anyone with M.S. had a Kennedy Ulcer?

By: heather pound

heather pound — Fri, 11 Nov 2011 22:43:05 +0000

I think this blog is amazing and wonderful. I am a veteran caregiver of 14 years and counting. I have an organization called United Caregivers of America and I recently created Senior Watch 2011 with Heather Pound. I have a radio show on blog talk radio and a posterous page. I recently connected with MS patients and their caregivers on face book. I am going to post a connection to your blog and other informative and helpful blogs and sites like it on my posterous, tumblr, face book, and I am going to spread the word via cinch and blog talk radio. My email is heathercares2011@gmail.com if you have any questions for me.

By: kc

kc — Sat, 10 Sep 2011 13:59:20 +0000

I am trying to find support for my friend her husband has ms and she does not have any support, if anyone knows of any other ms carers in catford area please email me and maybe I can get you in touch.

By: John

John — Mon, 01 Aug 2011 20:04:21 +0000

Hi Gabrielle,

My wife is entering her 8th year of primary progressive ms. She also has a very messed up
lower spine area (s.i. region) due to previous injury. When pain management gets to be too much, she gets relief from a small toke of medical marijuana. It doesn’t take the pain away but rather lets her focus on other things and not ‘think’ about the pain. We live in a state that allows the use of med.mj and we’ve always believed in it’s medicinal qualities. Neither of us smoke it
recreationally. I’ve also seen it help my brother-in-law, who has been a quadreplegic for almost 10 years… Same thing… it helps him to not ‘think’ about the pain…

Something to consider… Good Luck in your search for both medication and support (something I’ve just started to seek)

John

By: Gabrielle

Gabrielle — Sun, 24 Jul 2011 15:31:35 +0000

Dear Rick,
My husband has had multiple sclerosis for 16 years. It has changed from relapsing-remitting to secondary progressive multiple sclerosis. He currectly is in a hospital bed and if the pain isn’t intense will try to sit in a electric wheelchair for as long as he can stand it. I’ve been current on the medications that have been suggested for secondary multiple sclerosis and when we last spoke with a neurologist , he indicated there wasn’t anything we could do but try to make my husband be comfortable. I was hoping that you or some of your readers would know of any medication that could help him. I was also hoping that you would have some information on a caregivers support group for secondary multiple sclerosis that is on-line. As you can imagine, it’s not that easy to leave the house and none of our friends visit. Understandably, they are busy with their own lives. Any help you could provide would be appreciated.

Thanks,
Gabrielle

By: Donna

Donna — Sun, 10 Jul 2011 00:32:42 +0000

I’ve started a similar blog much like yours for what seems to be the same reason. I find that now that my husband cannot do much for himself that it is impossible for me to go to support groups or anywhere else for that matter. I thought maybe a blog would help me connect to others and obtain the support I’m seeking and at the same time be a resource for others. Thanks for your example.