Comments for MSCaregiver.com, what works for me http://www.mscaregiver.com Multiple Sclerosis Caregiving - Doing Your Best When You Can't Make It Better Thu, 28 Aug 2008 03:59:07 +0000 http://wordpress.org/?v=2.6 Comment on It’s Just Wrong by sheldonp http://www.mscaregiver.com/2007/10/28/its-just-wrong/#comment-67 sheldonp Sun, 16 Mar 2008 23:05:07 +0000 http://www.mscaregiver.com/2007/10/28/its-just-wrong/#comment-67 Worms in the brain? Whatever. As far as I know there is no cure for this devastating disease. But since this "clinic" is in Mexico and out of the jurisdiction of the US there is little that can be done, but to work at discouraging others to not go there out of desperation for a glimmer of hope. I see biotechnology as the light at the end of the tunnel. Worms in the brain? Whatever. As far as I know there is no cure for this devastating disease. But since this “clinic” is in Mexico and out of the jurisdiction of the US there is little that can be done, but to work at discouraging others to not go there out of desperation for a glimmer of hope. I see biotechnology as the light at the end of the tunnel.

]]> Comment on MS Medications: Questions I Ponder by Joan http://www.mscaregiver.com/2008/01/29/ms-medications-questions-i-ponder/#comment-55 Joan Sat, 02 Feb 2008 20:53:13 +0000 http://www.mscaregiver.com/2008/01/29/ms-medications-questions-i-ponder/#comment-55 Good questions! I hope SOMEONE has an answer, I sure don't. Good questions! I hope SOMEONE has an answer, I sure don’t.

]]> Comment on Inspiring Stories of People with Multiple Sclerosis by Rick http://www.mscaregiver.com/2007/12/06/inspiring-stories-of-people-with-multiple-sclerosis/#comment-43 Rick Sat, 08 Dec 2007 15:49:48 +0000 http://www.mscaregiver.com/2007/12/06/inspiring-stories-of-people-with-multiple-sclerosis/#comment-43 You're right about the video's messsage, Joan. I am happy when I hear stories of MS patients who seem unaffected by their disease. However, I know the majority of MS patients I've met have been significantly impacted by the disease process. And like you, the stories that seem most important to me aren't the "Mt. Everest" tales. Rather, they are the stories of MS patients who get knocked down and then get up again, over and over and over again. They're the stories of people with MS, like my wife, who have bad days yet maintain a pleasant attitude about life, who suffer themselves but still reach out to others and who refuse (every time) to stay down. MS is unpredictable. But for most patients, things do change. Decline does happen. Stories of people who "just deal with it" are inspiring. Thanks for your comment, Joan. You’re right about the video’s messsage, Joan. I am happy when I hear stories of MS patients who seem unaffected by their disease.

However, I know the majority of MS patients I’ve met have been significantly impacted by the disease process. And like you, the stories that seem most important to me aren’t the “Mt. Everest” tales.

Rather, they are the stories of MS patients who get knocked down and then get up again, over and over and over again. They’re the stories of people with MS, like my wife, who have bad days yet maintain a pleasant attitude about life, who suffer themselves but still reach out to others and who refuse (every time) to stay down.

MS is unpredictable. But for most patients, things do change. Decline does happen. Stories of people who “just deal with it” are inspiring.

Thanks for your comment, Joan.

]]> Comment on Inspiring Stories of People with Multiple Sclerosis by Joan http://www.mscaregiver.com/2007/12/06/inspiring-stories-of-people-with-multiple-sclerosis/#comment-42 Joan Sat, 08 Dec 2007 02:49:08 +0000 http://www.mscaregiver.com/2007/12/06/inspiring-stories-of-people-with-multiple-sclerosis/#comment-42 The thing I like about this video is that it is realistic and I can relate to it. He is not saying how MS isn't defeating him and he can still climb Mt. Everest. He is admiting that things have changed and declined, and he is just dealing with it. Thank you for sharing this. The thing I like about this video is that it is realistic and I can relate to it. He is not saying how MS isn’t defeating him and he can still climb Mt. Everest. He is admiting that things have changed and declined, and he is just dealing with it.

Thank you for sharing this.

]]> Comment on It’s Just Wrong by jajanes http://www.mscaregiver.com/2007/10/28/its-just-wrong/#comment-12 jajanes Tue, 30 Oct 2007 10:51:50 +0000 http://www.mscaregiver.com/2007/10/28/its-just-wrong/#comment-12 It's awful, but people have been selling snake oil since the dark ages and I don't think they'll stop anytime soon. I think one reason things like this offer a glimmer of hope to rational people is because every once in a great while, it turns out that the "crazy" ideas were right. (The medical community thought Robin Warren was incompetent when he said the bacteria H pylori was responsible for the formation of ulcers). Obviously MS isn't caused by "worms", and his cure is on the same level as psychic surgery, but desperation can cause us to make choices we'd scoff at otherwise. It’s awful, but people have been selling snake oil since the dark ages and I don’t think they’ll stop anytime soon. I think one reason things like this offer a glimmer of hope to rational people is because every once in a great while, it turns out that the “crazy” ideas were right. (The medical community thought Robin Warren was incompetent when he said the bacteria H pylori was responsible for the formation of ulcers). Obviously MS isn’t caused by “worms”, and his cure is on the same level as psychic surgery, but desperation can cause us to make choices we’d scoff at otherwise.

]]> Comment on Discovering the Joy in What Is Beats Aching for What Might have Been by gabe http://www.mscaregiver.com/2007/09/15/discovering-the-joy-in-what-is-beats-aching-for-what-might-have-been/#comment-6 gabe Fri, 19 Oct 2007 21:00:43 +0000 http://www.mscaregiver.com/2007/09/15/discovering-the-joy-in-what-is-beats-aching-for-what-might-have-been/#comment-6 wow. good stuff. - nice to finally have a story behind the picture i have seen for years. wow.

good stuff.

- nice to finally have a story behind the picture i have seen for years.

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