MS Caregiving

Rick on October 22nd, 2011

In the world of psychology, denial is considered a normal human response to information that may be overwhelming. Denial allows a person receiving bad news to take a break. It lets one hold off bad news – like a football player with his arm out to block a tackle. It offers one time to fortify […]

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It’s an odd thing I sometimes consider. (Trust me, I’m not crazy) – but once or twice a year I wonder, what if the neurologists are wrong? What if my wife doesn’t have Multiple Sclerosis? What if she has something that looks like MS but isn’t as bad? I know it’s wishful thinking. And I […]

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Rick on December 21st, 2010

Driving past a neighbor’s last week I saw him and his wife setting up Christmas decorations in their yard. The lights around the edge of the house had been put in place the week before. These decorations were the large figures that sit on the ground and are lit up at night. Later that evening […]

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Rick on December 21st, 2010

Readers of the Multiple Sclerosis Caregiving blog make comments that can usually be separated into just a few subjects related to caregiving: 1) shock at an MS diagnosis, 2) concern about the future and worry about how difficult caregiving will be, 3) questions about a particular aspect of caregiving, and 4) support for another reader. […]

Continue reading about Thanks for Helping Each Other!

Rick on October 6th, 2010

When my daughters were smaller I loved to play with them in our yard. Some of my favorite memories are of them running barefoot through the green grass in their pajamas early on a cool, Spring morning. Running so fast their long hair flowing behind, grinning from ear to ear, their eyes shining with delight, […]

Continue reading about Too Many Blessings and Not Enough Time!

Rick on September 22nd, 2010

I’ve thought it many times since my wife was diagnosed with Multiple Sclerosis: I want to outlive my wife so I can take of her. I’ve always known exactly what I mean by this. And it’s simple. I want to be here to care for her as long as she lives. I don’t want her […]

Continue reading about The Implication in the Dark

Rick on June 16th, 2010

The title gives it away, but with which medical professional is a Multiple Sclerosis patient likely to have the most contact? In my experience, it has been her pharmacist. Most medications are refilled monthly. Between quarterly or annual visits to the neurologist, I believe most concerns about Multiple Sclerosis are related to medications. And in […]

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Rick on March 31st, 2010

During the last few weeks, I’ve been asked by caregivers (via this blog’s contact form) for help finding support for themselves in their local communities. I take these requests seriously. In fact, it would be impossible not to because the caregivers include information about their particular needs. Perhaps it’s empathy, or a sense that we’re […]

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Rick on January 18th, 2010

On a recent evening, my wife and I were sitting in the living room, both of us reading and sipping hot chocolate before we ended our day. She, snuggled in a dark pink sweater and wrapped in her light pink afghan, caught my eye as I sat in my chair. She smiled. “I enjoy the […]

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Rick on December 20th, 2009

Today’s Herald Tribune in Sarasota, Florida, offers an excellent story of one couple’s journey of love. The subtitle, “A Manatee County man’s devotion to his wife seems limitless“, summarizes the story of Oliver and Phyllis DeSofi. Mr. DeSofi is a committed husband and MS caregiver for his wife. Don’t miss this story … “One couple’s […]

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Spend time on the Family Caregiver Alliance website at: http://www.caregiver.org Of particular interest to Multiple Sclerosis caregivers will be the Family Caregiver Alliance Fact Sheet on Multiple Sclerosis. In addition to common information about MS, the fact sheet includes important information about cognitive problems caused by MS and their impact on caregivers. For example, “About […]

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Rick on February 11th, 2009

“Doing Your Best When You Can’t Make It Better” has been the tagline of this blog since I started it. I think the tagline may express too much futility. Maybe I was having a bad day or month when I wrote it. Today, I’m changing the tagline to something much more positive and more reflective […]

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Rick on January 31st, 2009

One of the first commitments I made to myself after my wife was diagnosed with Multiple Sclerosis is that I wouldn’t allow it to impact my children in negative ways. That was eight years ago. They were five and eight years old at the time. Fortunately, my wife and I have been able to keep […]

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Rick on January 17th, 2009

As a caregiver, you know your family finances are probably different than those of some of your friends. You have medical expenses most of your friends do not have. Chances are good that your friends’ families are dual income families. Yours is probably not. Caregiving often brings its own unique set of financial burdens. Helpful […]

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Rick on April 4th, 2008

As a caregiver, if you wonder when or whether your caregiving might be “too” caregiving, there’s a simple way to find out. Ask the person for whom you care if you’re doing too much.

And remember, what you’re needed for today may not be what you’re needed for tomorrow. The symptoms caused by Multiple Sclerosis vary over time. You may need to do the grocery shopping for several months in a row and then be surprised when you’re told, “I’ll do the shopping today.”

Continue reading about Can a Caregiver Be Too Helpful?

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