Calling yourself a caregiver is good for you and makes you a better caregiver. The National Family Caregivers Association commissioned a study from The Caregivers Advisory Panel in 2001 to learn about the impact self-identifying oneself as a caregiver has on caregivers. Information about the study is on the NFCA web site at “NFCA’s 2001 [...]
Continue reading about Why Identify Yourself as an MS Caregiver?
It’s Sunday. Theologians and philosophers have wrestled long with an odd problem. They, like many who suffer or who care for someone whose life is limited by a disease, wish to figure out how to make three accepted truths true at the same time. They seek to explain the unexplainable. For me, at this point [...]
Caring Today Magazine, LLC publishes Caring Today. You can purchase a 1 year subscription to the hardcopy magazine for $12.95 on the CaringToday.com web site. I’ve not yet read the magazine, but I do like the information available on their website. The information is practical, personal and enlightening. The focus of the website is on [...]
I called the health insurance company’s 800 number today to check on the status of the Provigil coverage review. The inquiry was quick and easy because I had the case number handy (remember the caregiver tip: keep good records). The coverage has been approved for another 12 month period. I’ll write a “thank you” letter [...]
Continue reading about MS Medications, Insurance Coverage and 2 Ounces of Gold
I’m not a doctor. Nor am I a radiologist. Being a caregiver, though, makes me incredibly curious about the medical details related to my wife’s multiple sclerosis. I like to know what my wife’s doctors are talking about and I’m fascinated by how “fearfully and wonderfully made” we are.
Continue reading about What Radiologists Look for on an MRI for Multiple Sclerosis
After spending almost an hour on the phone with our pharmacist, my wife’s neurologist’s office and several employees of our health insurance company, I took a break before writing a letter to appeal the insurance company’s decision to deny the neurologist’s appeal of the insurance company’s refusal to authorize payment for another year. I wrote [...]
Caring for a person with Multiple Sclerosis is steady work. Because Multiple Sclerosis is a progressive neurological disease in which the effects of neurological damage accumulate over time, the work required of an MS Caregiver when a patient is first diagnosed is usually not as difficult or demanding as that required for an MS patient [...]
Recent Comments
“I know what you are going thru James my husband has ms and the pain has been awful for him ...”
“Linda Thanks Linda I am glad to I have this site and friends who know what it is like to ...”
“Lisa My husband is seeing a counsler from the va in Saginaw and when he sees him he is somewhat ...”
“Kathy, What I am hearing from you is that you are in need of a lifeline for yourself. and fast. ...”
“My goodness Kathy, you did get double-whammied didn't you? It sounds very lonely and just plain hard. I've seen it so ...”
“Hello myname is Kathy I found this site looking for support my husband has MS we found out on our ...”
“Hi James, I was amazed to read your comment. I appreciate your candor. Your situation mirrors mine. ...”
“Bravo Linda, bravo. I totally support what you are doing. We are individuals with one short life to ...”